President’s Message

Tina DeAngelo, President, NAMI Greater Framingham

Psychiatric Emergencies  (Updated February 17, 2010)

Every day, emergency rooms throughout Massachusetts address Psychiatric Emergencies. The American Psychiatric Association defines such an emergency as:

An acute disturbance of thought, mood, behavior or social relationship that requires an immediate intervention as defined by the patient, family or the community.

According to a study by the  Psychiatric Emergency Research Collaborative [1]about ten percent  of all hospital emergency room visits involve a psychiatric emergency and the rate is increasing.  Alcohol, drug-related emergencies, delirium, domestic violence, depression and anxiety disorders, acute psychosis, and violent behavior are associated with these visits.  Fifty five percent of the patients threaten self harm. Twenty percent threaten harm to others.  The police are frequently involved.  Forty five percent will be admitted to an inpatient unit or observation unit – some involuntarily.  Six percent will be physically restrained.  Family members, friends, spouses, and partners are frequently involved.

Most hospital emergency departments are not adequately prepared to handle a psychiatric emergency.  A person in a psychiatric crisis being treated in an hospital emergency department may wait hours before seeing a clinician trained to screen and treat the situation.  Patients in an acute crisis may experience hours or even days of delay before they can be assessed, stabilized, and acute care initialized.  Continuity of care is an issue.  Patients find themselves shifted from one treatment facility to another, and treated by different clinicians at every stage of their movement.

The police and the first responders may have little  training regarding mental illness.  A person experiencing a psychiatric emergency may not have committed a crime, has not given up their civil rights, remains a vulnerable human being, and deserves compassionate, respectful, legal and ethical treatment. In many psychiatric emergencies a person in crisis may not ask for help, may resist assistance, and may deny they have any problem.

In 1975, the United States Supreme Court ruled that involuntary hospitalization and/or treatment violates an individual’s civil rights.  The results of this decision has forced states such as Massachusetts to change their statutes regarding involuntary commitment and treatment. In Massachusetts an individual must exhibit behavior that is a danger to himself or others in order to be held for observation, usually 72 hours.  A court order can extend this period of involuntary treatment or hospitalization.

During such a psychiatric crisis, police officers, emergency responders, medical doctors, family members, partners, and friends, all well meaning, wield tremendous power over a person in crisis.  At times this power is misused.  A person with mental illness, who finds themselves at the center of this emergency, is more likely to be ripped from their support environment, and processed by an overworked group of people not prepared to adequately handle psychiatric emergencies and end up in a strange treatment environment being treated and living with strangers.  Frequently, the civil rights of a person in crisis are violated.

Who should you call for help during a psychiatric emergency?   Do you call 911, the police, your doctor, Samaritans, or Psychiatric Emergency Services(PES)?  Advocates’ Psychiatric Emergency Services (PES), is the MetroWest Area provider funded by the Massachusetts Behavioral Health Partnership and the Department of Mental Health.   PES is infrequently called.  Most people who can use PES have never heard about this service.

PES is designed to deal with these emergencies. Early and effective intervention in a crisis can lead to recovery and growth. The goal of the PES mobile team, which is available 24 hours per day, 365 days per year, is  to  provide  customer friendly, community-based, proactive intervention services through collaboration with the individual, family members, providers and other community agencies. PES meets  individuals experiencing a behavioral health crisis in the least restrictive setting possible, making every effort to honor the person’s dignity, respect the person’s rights, afford the person as many real choices as we can within the scope of the person’s risk factors, and take positive, affirmative actions to foster the person’s wellbeing.

The PES team has found evaluations in homes and other natural settings incalculably more valuable for the consumer’s comfort and the clinician’s depth of clinical understanding and knowledge. Mobile evaluations in homes or community settings provide a non-threatening setting for  people  to be assessed, stabilized and diverted from unnecessary emergency room visits, police involvement and inpatient admissions.

In the Framingham area you can reach PES at 800-640-5432.

What is your opinion about the above article?

Tina

[1] General Hospital Psychiatry, Psychiatric Emergency Research Collaboration, Volume 31, Issue 6, November 2009, pages 515 – 522.

Mental Illness Recovery, Health and Wellness

Tina DeAngelo

 

Persons with mental illness die 25 years earlier than the general population.  Most people suffering with mental illness can improve their lives through treatment.  However, most die from preventable illnesses such as diabetes, cardiovascular disease, and respiratory and infectious diseases. 

Advocates, Inc., the National Alliance on Mental Illness, and the MetroWest Medical Center are sponsoring two forums to address this crisis.   A free public forum will be conducted on Thursday October 1, 2009, 7:30 pm to 9:00 pm at the MetroWest Medical Center, Medical Arts Building, MacPherson Hall, 85 Lincoln Street, Framingham MA 01702.  A CME Accredited  Clinicians Grand Rounds Forum will be conducted Tuesday October 13, 2009, 8:00 am to 10:00 am MetroWest Medical Center Main Entrance, Perini Auditorium 115 Lincoln Street, Framingham MA 01702.

Two of the speakers at both events will be Dr. Christopher Gordon, M.D., Vice President of clinical services and medical director of Advocates Inc. and Dr. Deena Ebright, M.D. a board certified internist on the medical staff at MetroWest Medical Center.

The National Alliance on Mental Illness of Greater Framingham is a non-profit, grassroots organization providing advocacy, support and education for persons with mental illness and their families. The MetroWest Medical Center is a 319-bed regional health care system that includes Framingham Union Hospital, Leonard Morse Hospital Natick, and the MetroWest Wellness Center Framingham.  Advocates Inc, is a leading provider of mental health and substance abuse services for individuals and families.

RSVP (Registration)

http://recoverycliniciansforum.eventbrite.com

http://recoverypublicforum.eventbrite.com

Tina DeAngelo

A Message from the President of the Board

NAMI Greater Framingham Annual Report

July 31st, 2009

As the new President of the NAMI Greater Framingham Board, it is my pleasure to summarize the last 12 months of activity at NAMI Greater Framingham and share with you our vision for 2010. I thank Paul Papas, past President and Jane Wennerberg, past Vice President for their previous service.

Every year we conduct a number of Education Programs. Over the last 12 months we have been very excited to have a web conference and several seminars. Last September, Grace Fogarty presented a moving and informative seminar on Suicide Prevention. In October, we learned about the services of the Wayside Youth and Family Support Network.  Attorney and Clinician Gary Zalkin led a web conference on Guardianship in November.  In a May  seminar,  Keith Scott, Advocates Director of Peer Support and Recovery discussed Advocates  mental health and behavioral services. In April,  NAMI Massachusetts Executive Directory Laurie Martinelli and Policy Directory Toby Fisher discussed legislative priorities and how to lobby our legislature..  Representative Pamela Richardson joined this discussion.

In September and October of 2009 NGF will cooperate with Advocates, Inc and the MetroWest Medical Center in Framingham to conduct two educational forums on Mental Illness Recovery, Health and Wellness.  The forum in September will be an in-service forum, The other forum in October will be open for the general public. Both forums  will discuss the fact that persons with mental illness die 25 years younger than their peers without mental illness and outline a protocol to deal with this situation.  Persons with mental illness face a perfect storm of poor diet, cigarette smoking, lack of exercise, stigma and oppression related to mental illness, are treated with drugs that cause obesity and diabetes, and a fractured medical system that provides them with poorer quality care than that for other persons with physical health issues.

Our fund raising activities consisted of mini-events such as gift wrapping at Barnes and Noble’s during the holiday season, individual donations, and our largest fund raiser The NAMI Boston Walk.  In 2008, NGF raised $15, 694 in Walk money and in 2009 raised $13, 451 in Walk money.  Members Mary Iglesias and Carol and Corinne Meyer have been key Walk fund raisers.  What has our Affiliate walk money accomplished?  We have made donations of Walk money to the following programs:

  • Advocates Project Peach, Framingham. A program that refurbishes used computers and makes them available to persons in recovery.
  • Employment Options Collective Kitchen, Marlborough.  A program that has clients prepare healthy meals to take home.
  • The Framingham Clafin Street supportive housing.
  • Marl borough’s Employment Options Annual Awards Banquet.
  • Advocates, Gordon Street, Framingham Group Home
  • MetroWest area Mental Health literature distribution

From our housing fund (not associated with The WALK) we were able to donate to Advocates’ new supported housing at Vernon Street in Framingham.

NGF conducts one Family to Family education program each year.  This September there will be a class starting September 8 and ending on November 24, 2009.  NGF has one NAMI Care support group for consumers in Framingham, and one NAMI Connection group in Marlborough.  Our family support group continues to meet once each month in Framingham with a consistent attendance of 15 to 20 people.  In March, Larry and Tina DeAngelo were sent by NAMI Mass to attend training in St. Louis to be certified as Family to Family state facilitator trainers.

We are especially proud of the work accomplished by NGF board members Scott Wennerberg, Grace Fogarty, and Vanessa Shoemaker.  Scott is a peer specialist at the Metro Suburban Learning Community in Quincy, and a WRAP (Wellness Recovery Action Plan) trainer.  Grace Fogarty is a full time employee at Advocates Inc and is responsible for media productions.  Grace has eloquently told her story of recovery through a number of video presentations published by Advocates.  Vanessa Shoemaker is the NGF Board’s recording secretary, chair of the affiliate membership committee, and a volunteer at Employment Options.   Mary Pond has been the NGF Treasurer for the last four years.  As Treasurer, Mary manages affiliate expenditures, the affiliate bank account, government reporting,  membership and the Help Line.

Our mission at NAMI Greater Framingham in 2009-2010 remains the same to advocate and support persons with mental illness and their families.  Our board will meet in August and discuss specific objectives for the next 12 months.  Most assuredly those objectives will be to increase membership and reach out to diverse MetroWest Communities. Our programs will include Family to Family Education, NAMI Care, family/caregivers monthly support groups, and NAMI Connection support groups, and more educations programs that are more effectively promoted.  We are especially interested in providing education and support to families dealing with children with mental illness.  As part of the NAMI family we are honored to be of service to the MetroWest area.

A Message From The Board President

The following case was reported to me.  In order to insure confidentiality I am not using names and have changed the location of events.

- 18 year old son exhibits symptoms such as paranoia, delusions, and severe anxiety.

- Mother takes the son to a psychiatrist. The doctor indicates the son may have schizophrenia but decides to run some tests including a brain scan.

- The tests show the son has a brain tumor.

- The psychiatrist refers the son to neurology at a well-known Boston hospital.

- The son starts psychotherapy with a psychologist.

- The son has seizures.

-The son is prescribed anti-seizure, and anti-anxiety medications.

- The son has episodes of temper, brakes off relationships with family members, isolates himself, misses high school graduation, refuses to take medication, says the doctors have misdiagnosed him, thinks doctors don’t like him, and says he is not ill.

I suggest you substitute a diagnosis of schizophrenia instead of a brain tumor in this case, and from a family caregiver’s perspective, this would be the situation:

1.  The insurance coverage would not be adequate.

2.  Some caregivers would blame the parents for the disease.

3.  Clinicians would be reluctant to involve the family, claiming HIPPA laws prohibit sharing the information or wanting to build a private relationship with the client.

4.  The parents would feel guilty and agonize over what did they did wrong.

5.  If the son continued to refuse his medication or treatment and had further major psychiatric events, short of violence, the parents would have to beg or lie to a treatment facility to accept their son.

6.  Family and friends may not be supportive of the family.  The family may be reluctant to tell the family about their son’s illness.

In the actual case, Points 1-6 have not happened - quite the contrary. Why?  The case takes on different characteristics because the brain disease has been identified as a tumor rather than Schizophrenia.

The case is informative yet tragic.  The battle against mental illness stigma and myth continues.

Tina DeAngelo

A Message From The Board President

I want to thank the NAMI Greater Framingham Members for electing me President of The Board of Directors.  It is a honor to be associated with such fine people.  I will do my best to make the coming 12 months a very productive year for NAMI Greater Framingham.

I would also like to thank the following retiring Board officers for their service to NAMI Greater Framingham:

Paul N. Papas II

  • Joined NAMI Greater Framingham Board in November 2003
  • Vice President June 2005 to October 2005
  • President November 2005 to June 2009
  • Walk Team Captain 2006-2008
  • Started website for affiliate in 2005
  • Set up group e-mail address for affiliate in 2005
  • Managed revision of affiliate bylaws in 2007
  • Advocate for legislation to improve services and housing
  • A champion for incarcerated persons with mental illness

Jane Wennerberg

  • Joined NAMI Greater Framingham Board in January 1999
  • Vice President December 2005 to June 2009
  • Support Group facilitator September 1998 to December 2005
  • Host of annual dinner May 1999
  • Responded to Help Line calls
  • Served on Walk Fund and Nominating Committees
  • Arranged catering of Options Clubhouse party 2006-2008
  • Participated in yard sale and gift-wrapping fundraisers
  • Advocate for legislation to improve services and housing

Tina DeAngelo, NAMI Greater Framingham President

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